5th October 2015
Freshwater Methodist Church, Brookside Road, Brookside, Freshwater
6th October 2015
Godshill Village Hall, Godshill, IW.

Welcome to the Parents Voice IW website!

Latest site updates:

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Hi Everyone! There are lots going on with all the Special Educational Needs and Disability (SEND) Reforms. Members of the forum have been busy working towards the changes, helping to influence the "Local Offer", Personal Budgets and Education, Health and Care Plans (EHC Plans). If you want to find out more about how you can be involved in the local development please contact Amanda by emailing parentsvoice@peoplematteriw.org or telephoning 01983 241494 or 01983 823898.

Parents Voice IW
We have two local "Support Hubs" for parents and carers of children and young people with additional needs, where families can meet each other over a cuppa and chat. You can also find out more about Parents Voice IW and feed in your views and experiences if you would like to. These support meetings are run by local parents, but are linked to and supported by Parents Voice IW.

There are currently monthly support meetings at Godshill (Village Hall) normally on the first Tuesday of the month, and at West Wight (Freshwater Methodist Church) normally on the first Monday of the month. Both start at 9.30am.

If you might be interested in hosting a "hub" in your local area, or if you would like to find out more about going along then please contact Amanda by emailing parentsvoice@peoplematteriw.org or telephoning 01983 241494 or 01983 823898.

Please also see our Events section for more information.

Local Offer 
The Isle of Wight "Local Offer" website has been designed to help parents and carers find the right support for children with special educational needs and disabilities. To view the website please click here.

To view a copy of the Local Offer leaflet that has been co-produced by the Isle of Wight Council, IW Clinical Commissioning Group and Parents Voice IW, please click here.

Would you like to be involved in helping to develop the Isle of Wight Transitions Pathway from children’s services to adult services? To find out more about this event being held on 28th September 2015 and organised by the Isle of Wight Council and NHS Clinical Commissioning Group, please visit the Events section of our website.

Bestival 2015
Please see the documents below for information about applications for IW Disabled Teen Bestival tickets (*subject to availability) for this September, via the Bestival Fairy. (Closing date for applications is the 9th August 2015)

Bestival 2015 Disabled nominations (age 13 to 18) information

Bestival 2015 Application Form (pdf version, for printing/posting)

Bestival 2015 Application Form (Word version, for printing/emailing/posting)

If you are considering applying for a disabled child aged 12 or under, please be aware that you can apply directly via the Bestival website to purchase a free Child Ticket (delivery charges apply), but follow the instructions carefully on the
Bestival Disability Access webpage. (Places maybe limited. Applications for Bestival 2015 Disability Access campsite, ONE FREE Personal Assistant Pass or car parking will close on the Bestival website on Friday 14th August 2015 – no applications will be accepted after this date.)

You can find the Isle of Wight Council consultations by visiting their website. You can also view information about their previous consultations, including those which were SEN and disability related.

Short Breaks
now have their own website pages which you can visit here.

You can view the latest Short Breaks Activity Guide by visiting their website here.

Visit the WightChYPS website for the latest Short Breaks activity updates.

Contact a Family have written a new parent guide The NHS & caring for a disabled child in England which you might find helpful.

KIDS National Inclusive Practice Network
e-bulletin newsletter: Jan 2015

The Isle of Wight branch of Carers UK
has a website. Visit the site to find out information and support that is available for local unpaid carers.

SENDIAS (formerly Parent Partnership)
SENDIASS provides information, advice and support to parents of children with special educational needs (SEN) and disabilities. Please contact them on 01983 825548 for further details or visit their website.

For details of the OCD Support IW meetings please see the Events section of our website.

For information about a support group for those affected by Tourettes please contact
Emma on 07738772045 or emma@tourettes-action.org.uk.

The Contact a Family e-Newsletter (July 2014) is available to view here.

A support group for adults with ADHD has been lanched. To find out more please visit the Support Groups section of our website.

IW Mencap
have a new website which can be found at www.isleofwightmencap.org 

Ability Dogs 4 Young People
, a local charity, is training assistance dogs for young disabled people here on the Island. To find out more please visit their website www.abilitydogs4yp.org.uk

The Working Families website has a variety of information including rights at work, benefits and childcare for carers of disabled children and adults. You can also view copies of the Waving not drowning project newsletters and e-bulletins. Other publications are also available, including  From child to adult: a guide to disability, transition and family finances.


To view their latest B4L newsletter please visit the Bridges for Learning website.

Local Support
A local ADHD Facebook Support Group has been set up at http://www.facebook.com/groups/adhdsupportiow/ for parents and carers of someone with ADHD, and also anyone affected by ADHD/ADD is welcomed. You can also find out more by visiting the public info page here, or you can view their poster.

Local Support
Face 2 Face IoW is a befriending scheme for parents discovering their child has additional needs. Please see here for more information about the scheme.

Goodleaf Tree Climbling - Special Branch
 offers woodland activities for disabled young people up to the age of 25 who live on the IW. For more information please visit their website.

Isle of Wight Inclusives Football Club
- all disabilities welcome.
Thursday evenings in Newport, 5.00 – 6.00 pm
(Term time only.) Cost £2 per session. Find out more here.

For information about courses at Bodster Equine Assisted Learning Centre please see their website.

Symbols Making Sense. This unique reading scheme of more than 40 books is aimed at children and people who need additional support to develop their reading skills. All text is supported by Makaton symbols. Suitable for a wide range of key stages and learning needs. Please visit www.just-special-marketing.co.uk for more information.

Activity Advice
If you would like help to find an appropriate group or activity for your child or young person to attend, please contact the Family Information Zone (FIZ), 11 Orchard Street, Newport, Isle of Wight, PO30 1JZ. Tel: 01983 821999, Fax: 01983 530308, contact them via here. Alternatively visit the info page here.

IPSEA's new On-line Information Service is launched.
Please see News for more information.

Bournemouth AFC and The Rainbow Club would like to invite you to the inclusive sports club for all children with a disability/additional needs, their parents/carers and siblings. Please see Clubs for more details. 

The first of three NICE guidelines has been published. "Autism spectrum disorders in children and young people: recognition, referral and diagnosis". You can download a copy of the guidelines at www.nice.org.uk/CG128 .

Welcome to the Isle of Wight Parents Voice website, run by parents for parents.

Through this website we hope to reach many more parents of children with special educational needs;

•providing an opportunity for parents to have their voice heard and influence decisions that directly affect them and their children by informing parents when their ideas and input are needed, by who and how to get involved.

•providing information on a wide variety of subjects, related to special educational needs, from local support groups and activities to national consultations and events.

•providing parents with the latest news on activities and services for special needs children on the Isle of Wight that may affect or be of interest to them and their family.

We aren't professionals and all our time is given voluntarily but we will do our best to provide as much information as possible in a timely fashion.

If you find any problems with the website i.e broken links or inaccurate information please don't hesitate to contact us at parentsvoice@hotmail.co.uk.

Please also let us know if there is anything you would like to see on these pages that would be of help to you as a parent. We can't promise to cover everything but if we can we will.

We hope you enjoy our website but above all we hope you find it useful and informative.

If you would like the opportunity to become more involved with Parents Voice and help us in influencing the future of services for children and young people with additional needs on the Isle of Wight, please Contact Us.

We aim to encourage parents/carers to "have a voice" and play an active role in ensuring their children are provided with the care that they need, are entitled to and deserve.

By getting involved with Parent Voice IW, you can have a voice and influence decisions that affect you and your family on the Isle of Wight.

Gallery Latest News
The Isle of Wight "Local Offer" website has been launched. It is aimed to help parents and carers find the right support for children with special educational needs and disabilities.
"The Children and Families Act 2014 is the culmination of over two years work with the views of parent carers at the heart. The new law will introduce a number of changes including a move from special educational needs statements to education, health and care plans."
The government has released a draft version of both the 0 to 25 Special Educational Needs (SEN) Code of Practice and regulations for consultation. These set out the detail of the proposed new SEN legal framework within the Children and Families Bill that is currently in Parliament.
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